Kindergarten student organizes awareness event for rare disease she has

Assume the largest organ in your body was on the fritz from birth. What do you think would be the most obvious problem?

“Her feet,” Amy Spinelli said when asked about her daughter’s ongoing struggle with epidermolysis bullosa. “Shopping for shoes used to be fun. With Ayla, it can be a difficult choice.” To read the full article from The Times Leader, click here.